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Palyatif bakım, multidisipliner bir ekiple hastaların fiziksel semptomlarını gidermeyi, hasta ve ailesine psikososyal destek sağlamayı ve onların yaşam kalitelerini yükseltmeyi amaç edinir. Palyatif bakımda hastaya bakım veren kişiler genellikle aile üyeleridir. Aile üyeleri, bakım verme sürecinde psikososyal, ruhsal ve ekonomik birtakım sorunlar yaşamaktadırlar. Bu araştırmanın amacı, bakım veren aile üyelerinin yaşam kalitelerini sosyo-demografik ve bakım sürecine ilişkin değişkenlere göre belirlemektir. Bu amaç doğrultusunda, Karabük Üniversitesi Eğitim ve Araştırma Hastanesi Palyatif Bakım Servisinde hastaya primer bakım veren 18 yaşından büyük, psikiyatrik sorunu olmayan ve çalışmaya katılmaya gönüllü 124 bakım verenle nicel bir araştırma gerçekleştirilmiştir. Sosyo-demografik özelliklerine göre yaşı yüksek olan, eğitim seviyesi düşük olan, geliri seviyesi düşük olan ve çocuk sahibi olan bakım veren aile üyelerinin yaşam kalitesi puanlarının anlamlı düzeyde düşük olduğu belirlenmiştir. Bakım verme sürecine ilişkin özelliklerine göre gün içerisinde bakıma fazla zaman ayıran, ailede başka bakım veren olmayan, sorumluluklarını yerine getirmekte zorlanan, sağlığı ve sosyal hayatı olumsuz etkilenen, uyku problemi yaşayan ve psikososyal desteğe ihtiyaç duyan bakım verenlerin yaşam kalitesi puanlarının anlamlı düzeyde düşük olduğu belirlenmiştir. Araştırmanın verileri, palyatif bakımın psikososyal yönüne vurgu yapılması ve bakım veren aile üyelerinin sosyal hizmet uzmanları tarafından desteklenmesi hususunda gerekliliği ortaya koymaktadır.
Palliative care aims to relieve patients' physical symptoms, provide psychosocial support to patients and their families, and improve their quality of life with a multidisciplinary team. In palliative care, patient caregivers are usually family members. The aim of this study is to determine the quality of life of family members who care for palliative care patients according to the variables related to the socio-demographic and care process. For this purpose, a quantitative study was carried out with 124 caregivers over the age of 18, who had no psychiatric problems and volunteered to participate in the study, in the Palliative Care Service of Karabük University Training and Research Hospital. According to their socio-demographic characteristics, it was determined that the quality of life scores of the family members who have high age, low education level, low income and child-bearing care are significantly low. According to the characteristics of the care-giving process, it was determined that the quality of life of the caregivers who devoted a lot of time to care during the day, who did not provide any other care in the family, who had difficulty in fulfilling their responsibilities, whose health and social life were negatively affected, who had sleep problems and who needed psychosocial support was significantly lower. The data of the research reveals the need to emphasize the psychosocial aspect of palliative care and support the family members who provide care by social workers.
Palliative care aims to relieve patients' physical symptoms, provide psychosocial support to patients and their families, and improve their quality of life with a multidisciplinary team. In palliative care, patient caregivers are usually family members. Family members experience some psychosocial, spiritual and economic problems in the caregiving process.The aim of this study is to determine the quality of life of family members who care for palliative care patients according to the variables related to socio-demographic and care process. For this purpose, a quantitative study was carried out with 124 caregivers over the age of 18, who had no psychiatric problems and volunteered to participate in the study, in the Palliative Care Service of Karabük University Training and Research Hospital. According to their socio-demographic characteristics, it was determined that the quality of life scores of the family members who have high age, low education level, low income and child-bearing care are significantly low.According to the characteristics of the care-giving process, it was determined that the quality of life of the caregivers who devoted a lot of time to care during the day, who did not provide any other care in the family, who had difficulty in fulfilling their responsibilities, whose health and social life were negatively affected, who had sleep problems and who needed psychosocial support was significantly lower. The data of the research reveal the need to emphasize the psychosocial aspect of palliative care and support the family members who provide care by social workers.
Alan : Sosyal, Beşeri ve İdari Bilimler
Dergi Türü : Ulusal
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