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Amaç: Palyatif hastaları ile zamanının büyük bir bölümünü geçiren bakım vericiler fiziksel, psikolojik, sosyal, maddi ve manevi olmak üzere birçok açıdan etkilenmektedir. Bu çalışma palyatif hastalarına bakım veren bireylerin bakım yükünü ve etkileyen faktörleri belirlemek amacıyla yapılmış tanımlayıcı- kesitsel bir araştırmadır. Yöntem: Bu araştırma 01 Kasım 2018-15 Haziran 2019 tarihleri arasında Ankara Pursaklar Devlet Hastanesi palyatif servisinde yatmakta olan hastalara en az bir ay süre ile bakım veren 98 bakım verici ile yürütülmüştür. Veri toplamada “Sosyodemografik Veri Formu” ve “Bakım Verenin Stres ölçeği (BVSÖ)” kullanılmıştır. Verilerin değerlendirilmesinde yüzdelikler, ortalamalar, One Way Anova, Independent Sample t Testi ve Mann Whitney U testi kullanılmıştır. İstatistik anlamlılık düzeyi için p< 0.05 kabul edilmiştir. Bulgular: Bakım verenlerin %59.2’sinin kadın, %69’unun evli olduğu, %93.9’unun bakım verirken güçlük yaşadığı, %89.8’inin bakım verirken destek aldığı sonucuna ulaşılmıştır. Katılımcıların Bakım Verenin Stres Ölçeği toplam puan ortalaması 8.94 ± 2.03 olup, %87.7’sinde subjektif bakım yükünün olduğu görülmüştür. Palyatif hastalarına bakım veren bireylerin bakım yükü ile yaş (p=0.032), aylık gelir durumu (p= 0. 020), bakım veren hastaya yakınlık derecesi (p=0.001), hastanın bakımıyla ilgilenilen süre (p=0.009), bakım verirken birinden destek alma (p=0.018), bakım verirken zorlanılan alan (p=0.023) ve günlük verilen bakım süresi (p=0.000) arasında istatistiksel olarak anlamlı bir ilişki vardır. Sonuç: Palyatif hastalarına bakım veren bireylerin bakım yükünün incelendiği bu araştırmada subjektif bakım yükünün yüksek düzeyde olduğu belirlenmiştir. Palyatif hastasına primer bakım vericiler için gereksinimlerine göre psikolojik ve sosyal destek sağlanması, sağlık profesyonellerinde bu konuda farkındalık oluşturulması önerilebilir.
Purpose: Palliative patients and care providers who spend a large part of their time are affected in many aspects, including physical, psychological, social, material and spiritual. This study is a identifying-cutting study conducted in order to determine the care burden and factors affecting individuals who take care of palliative patients. Method: This research was carried out between 01 November 2018-15 June 2019 with 98 caregivers who cared for patients in the palliative service of the Ankara Pursaklar State Hospital for a month. The data collection used "Sociodemographic Data Form" and "The Observator's Stress Scale (BVSÖ)" . The data was evaluated using percentages, average, One Way Anova, Independent Sample t Test and Mann Whitney U Test. P< 0.05 is accepted for the statistical significance level. The findings: 59.2% of nurturers were women, 69% were married, 93.9% had difficulties in providing care, and 89.8% received support in providing care. The participants’ Career’s Stress Scale was an average of 8.94 ± 2.03 points, with 87.7 per cent of subjective care burden. Age with the care burden of individuals who care for palliative patients (p=0.032), monthly income status (p=0). There is a statistically meaningful relationship between the patient’s degree of proximity (p=0.001), the patient’s care time (p=0.009), the support from one while giving care (p=0.018), the difficult area while giving care (p=0.023) and the daily care time (p=0.000). The study, which examined the care burden of individuals who take care of palliative patients, found that the subjective care burden was high. The provision of psychological and social support to the palliative patient according to their needs for primary care providers, the creation of awareness of this in health professionals can be recommended.
Aim: Palliative patients and caregivers of a large living space of their time are affected from many aspects including physical, psychological, social, material and spiritual. This study is a researcher-cross-sectional study of caregiver care burden and factors for palliative patients. Methods: This study was conducted with 98 caregivers who provided care for at least one month to patients hospitalized in the palliative ward of Pursaklar State Hospital between November 01, 2018 and June 15, 2019. "Sociodemographic Data Form" and "Caregiver Stress Scale (BVSÖ)" were used for data collection. In evaluating the data; Percentages, means, One Way Anova, Independent Sample t Test and Mann Whitney U test were used. For statistical significance level p <0.05 was accepted. Results: It was concluded that 59.2% of the caregivers were female, 69% were married, 93.9% had difficulties while providing care, and 89.8% received support while providing care. The total score average of the Caregiver Stress Scale of the participants was 8.94 ± 2.03, and it was observed that 87.7% had a subjective care burden. Care burden and age (p = 0.032), monthly income (p = 0.020), degree of closeness to the caregiver (p = 0.001), duration of care for the patient (p = 0.009), There is a statistically significant relationship between receiving support (p = 0.018), the area of difficulty in providing care (p = 0.023), and the duration of daily care (p = 0.000). Conclusion: In this study, which examined the care burden of individuals caring for palliative patients, it was determined that the subjective care burden was high. Providing psychological and social support for primary caregivers for palliative patients according to their needs, and raising awareness on this issue among health professionals may be recommended.
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