Abstract:

Objective: The main objective of this study was to explore the experiences of mothers parenting children with Autism Spectrum Disorder (ASD) with a view to formulate a conceptual model of parenting experiences based on the constructs identified. Design &Methods: The study used grounded theory methodology in order to derive a conceptual model for parenting a child with ASD. The participants were mothers between the age group of 24-50 years undergoing parent child training from Autism training Centre, Northern India. The study is based on in depth interviews with twelve mothers who were meeting the eligibility criteria. The interviews were digitally recorded with a voice recorder. The anonymity and confidentiality of the participants were assured. The translated data were coded and categorised using open code software Results: The qualitative data analysis revealed thirteen major categories and forty six sub categories and a core category was derived out of the concepts and formulated a conceptual model of coping with autism, Unique and differential parenting; Mothers Journey towards adaptation. Conclusion: This qualitative study provides evidence for parenting experiences of Indian mothers of children with ASD. The findings would provide identification of problems, need based care and guidance for professionals. Practice Implications: The conceptual model formulated could be used as a basis to test the hypothesis in various aspects of the concepts discussed in relation to mothers experiences of a child with ASD and thus a substantive theory of parenting a child with ASD could be developed in future after comparing and concept analysis of the existing parenting theories.

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