Amaç: Çocukluk çağında görülen kronik hastalığa sahip olan çocuk sayısı her geçen gün artmaktadır. Türkiye’de kronik hastalığı olan çocukların duygusal ve davranışsal problemleri ile yaşam kalitelerini ele alan çalışmaların sayısı ise oldukça sınırlıdır. Bu nedenle araştırmada kronik hastalığı olan çocukların davranışlarının ve yaşam kalitelerinin incelenmesi ve sonuçlar doğrultusunda öneriler sunulması amaçlanmıştır. Gereç ve Yöntemler: Araştırma Ankara il merkezinde bulunan Ankara Çocuk Sağlığı ve Hastalıkları Hematoloji Onkoloji Eğitim Araştırma Hastanesi Endokrin, Nöroloji ve Nefroloji polikliniklerinde diyabet, epilepsi ve kronik böbrek yetmezliği tanıları nedeniyle takip veya tedavi olan çocuklar ve anneleri ile yürütülmüştür. Araştırmada veri toplama aracı olarak “Genel Bilgi Formu”, “Çocuk ve Gençler İçin Davranış Değerlendirme Ölçeği” ve “Çocuklar İçin Yaşam Kalitesi Ölçeği” uygulanmıştır. Bulgular: Araştırmaya kronik hastalık tanısı almış 93 çocuk ve annesi dâhil edilmiştir. Araştırmaya dâhil edilen çocukların %53.8’i kız, %46.2’si erkek olup, kızların yaş ortalaması 12.8±0.8, erkeklerin yaş ortalaması 12.9±0.8 yıldır. Katılımcıların hastalık türlerine bakıldığında %46.2’si diyabet, %30.1’i epilepsi ve %23.7’si kronik böbrek yetmezliği tanısı olan çocuklardır. Araştırmada aile tipi ve hastalık türünün hem davranış hem de yaşam kalitesi üzerinde; sürekli ilaç kullanımı ve hastane yatış sayısının ise sadece yaşam kalitesi üzerinde anlamlı etkisi olduğu; buna karşın, yaşın davranış ve yaşam kalitesini anlamlı düzeyde etkilemediği belirlenmiştir. Sonuç:Araştırma sonucunda kronik hastalığı olan çocukların davranış problemlerinin yüksek, yaşam kalitelerinin ise düşük olduğu belirlenmiştir. Ayrıca, çocukların davranış problemleri ile yaşam kaliteleri arasında negatif yönde anlamlı bir ilişki olduğu belirlenmiştir.
The number of children with chronic diseases occurring in the childhood period increases every day. There are only a limited number of studies in Turkey addressing the emotional and behavioral problems and quality of life of children with chronic diseases. Therefore, this research aims to study the behaviors and quality of life of children with chronic diseases and provide recommendations. Material and Methods: The study was conducted on children who were diagnosed with diabetes, epilepsy, and chronic renal failure and followed-up and treated at the Endocrinology, Neurology, and Nephrology clinics of the Ankara Pediatric Haematology, and Oncology Training and Research Hospital located in Ankara city center, and on their mothers. The "General Information Form", "Behavioral Assessment Scale for Children and Youth" and "Quality of Life Scale for Children" were used as tools of data collection for the study. Results:Ninety-three children with chronic diseases and their mothers were enrolled in the study. The percentages of girls and boys enrolled in the study were 53.8% and 46.2% respectively, where the average ages of girls and boys were 12.8±0.8 and 12.9±0.8 respectively. As regards the types of diseases of the participants, diabetes (46.2%) was followed by epilepsy (30.1%), and chronic renal failure (23.7%). It was found that the family type and the medical condition had a significant effect on both behavior and quality of life, whereas continuous use of medication and number of hospitalizations only had a significant effect on quality of life. The age group did not have a significant effect on the behavior or quality of life. Conclusion: As a result of the research, it was determined that children with chronic diseases had a high rate of behavioral problems and a low quality of life. Furthermore, it was found that there was a negative significant relationship between the behavioral problems of children and their quality of life.
Objective: The number of children with chronic diseases occurring in the childhood period increases each day. There are only a limited number of studies in Turkey addressing the emotional and behavioral problems and quality of life of children with chronic diseases. Therefore, this research aims to study the behaviors and quality of life of children with chronic diseases and provide recommendations. Material and Methods: The study was conducted on children who were diagnosed with diabetes, epilepsy, and chronic renal failure and followed-up and treated at the Endocrinology, Neurology, and Nephrology clinics of the Ankara Pediatric Haematology, and Oncology Training and Research Hospital located in Ankara city centre, and on their mothers. The “General Information Form”, “Behavioral Assessment Scale for Children and Youth” and “Quality of life Scale for Children” were used as tools of data collection for the study. Results:Ninety-three children with chronic diseases and their mothers were enrolled in the study. The percentages of girls and boys enrolled in the study were 53.8% and 46.2% respectively, where mean ages of girls and boys were 12.8±0.8 and 12.9±0.8 respectively. As regards the types of diseases of the participants, diabetes (46.2%) was followed by epilepsy (30.1%), and chronic renal failure (23.7%). It was found that the family type and the medical condition had a significant effect on both behavior and quality of life, whereas continuous use of medication and number of hospitalizations only had a significant effect on quality of life. The age group did not have a significant effect on the behavior or quality of life. Conclusion: As a result of the research, it was determined that children with chronic diseases had a high rate of behavioral problems and a low quality of life. Furthermore, it was found that there was a negative significant relationship between the behavioral problems of children and their quality of life.
Alan : Sağlık Bilimleri
Dergi Türü : Uluslararası
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