Background: Studies focusing on the burden of parents informally caring for offspring with chronic illnesses such as Angelman Syndrome are rare, despite the challenging task of parenting a person with such a disabling illness. The present article seeks to study the experience of being a parent and, simultaneously, an informal caregiver for a person with Angelman Syndrome, pursuing to investigate the effects of autonomy on the caregiver burden and how parental satisfaction mediates this relationship.
Dergi Türü : Uluslararası
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