Özet:

Abstract This study aims to analyze the health care of children and adolescents with chronic illnesses. It is a qualitative research, carried out with ten caregivers of children/adolescents with chronic illnesses, with the aid of a map speaker and an in-depth interview, from March to May 2015. The data were interpreted by the thematic analysis proposed by Minayo. Three categories were elaborated: "First steps in the search for care"; "Factors that influence care"; and "Daily care: rearrangements in family routine after the diagnosis of chronic illness". Family pilgrimage through health services was identified due to limited, non-resolving care and difficulties in accessing primary care; lack of preparation of professionals at different levels of care to deal with chronic childhood and youth illnesses; impaired communication between services; lack of accountability of public agencies in follow-up and supply of inputs. We highlight the welcoming to others who come to their aid, qualified and sensitive listening and the ethics of responsibility as anchoring elements for care in chronic conditions of children and adolescents.

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