Abstract:

The study was applied to parents and fathers with children with down syndrome living in Adyaman in August-September-October 2018 in order to determine the level of disappointment of families with down syndrome living in Adyaman, stress and stress they perceive. The universe of the study is composed of parents and parents with 148 children with down syndrome living in Namyaman. The sample group was composed of 82 volunteers with the participation of parents and parents with down syndrome children. In the study, the survey method was used as a data collection tool. The application is made up of four sections. In the first section, there are 5 items to identify the demographic information of the participants. In the second part of the survey, the "Added Stress Scale" was used, in the third part, the "Added Stress Scale" and in the last part, the "Unfortunate" was used. The results of the survey were summarized by the frequency analysis and the SPSS 15 package program was used for the analysis of the data. The findings show that families with children with Down syndrome have a lower level of disappointment as their educational level increases. The level of disappointment for babies who have graduated from primary or high school is low, but parents who have graduated from university still have hopes. When considered in terms of income, there is no difference in perceived stress. But as the income decreases, the level of disappointment increases. As the monthly income increases, the result is that the self-confidence approach increases. Parents with relatives married are more desperate. Mothers with Down syndrome have a higher level of stress than their parents.

Abstract:

This study has been carried out in Adiyaman, Turkey with a group of families, who have children with down syndrome (CDS), to investigate the despair levels of families and their parental attitudes on perception and coping with stress in August-October 2018. The population of the study consists from parents of 148 CDS who live in Adiyaman/Turkey. The sample group includes 82 volunteer fathers and mothers. Data has been collected by survey methodology. The survey has 4 stages. The first stage includes five specifications which aim to detect the demographical information. Second stage is “Perceived Stress Scale (PSS)”, third stage is “Overcoming the Stress Method Scale (OSMS)” and the last stage is “Despair Scale (DS)”. The obtained data have been summarized by frequency analysis, SPSS 15 suit of program was used to analyze the data. As the education level increases, the despair level decreases. The samples who have graduated from primary school or high school have low despair level but the samples who have graduated from university still have hope. When the income considered there is no difference at the perceived stress. But the despair level increases as the income decreases. It has been concluded that as the monthly income increases the self-confidence approach increases. The parents who have consanguinity marriage are more desperate. It has been concluded that stress perceived by mothers who have CDS is higher than fathers.

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