Özet:

Congenital heart diseases constitute an important part of the chronic disease group in childhood. The fact that congenital heart disease affects important dimensions of health in children's social and personal relationships and daily activities has led to an increased interest in health-related quality of life measures in the field of cardiology. Children with heart disease live long periods of time with their disease. It is important that health professionals manage the follow-up and treatment process of the disease. The child may need angiography or cardiac surgery. Both children and parents are affected by this long and troublesome process. After cardiac surgery, the child may encounter problems in terms of physical, emotional, and social well-being, which leads to functional limitations. Parental support and family functioning have an important role in improving a child's quality of life. In this period, the support of families for their children is as important as the support of their children. Primary support to the family is given by the nurse. Nurses’ roles are to educate the family about the disease and help them cope, to prepare the child and family for surgery, to give postoperative care, and to prepare for discharge to get through the process more easily. In this review, quality of life and nursing care in children with heart disease are discussed.

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